TINA'S MS - (in brief)
Tina was fully diagnosed in 2009 (after her first attack in 2007 which left her right arm paralysed while at work one day).
After many tests she was told that there was an 80% chance of MS and to wait for the next attack. Full diagnosis was not confirmed for two years - something which actually came as a relief. At least we then knew what was wrong.
A course of different drugs over the next few years did not stop the disease from progressing.
With worsening disability, there is no longer time to wait for more temporary fixes when the disease could be halted now.
Her Grandmother who also had MS, was still independent and able bodied into her 60's. Tina's MS is much more aggressive.
Memories of pushing her Grandmother around in a wheelchair are still vivid.
SYMPTOMS -
In the past 2 years, her worsening symptoms have severely impacted on her day to day life.
Some of these include very slow unsteady walking (only for short distances), balance/co-ordination difficulties, cognitive issues, extreme fatigue, voice weakness, tremors, numbness, heat/noise intolerance, dizziness, titubation (head nodding), arm/hand paralysis, vertigo, head pain and extreme weakness.
Many of these symptoms are invisible to others, which adds to the frustration of living with this disease.
nephew clint 2011
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HSCT hematopoietic stem cell transplant
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